Every year, the International FOP Organization (IFOPA) honors those who make outstanding contributions to the IFOPA’s mission to cure the ultra-rare genetic disease Fibrodysplasia Ossificans Progressiva (FOP).

This year’s winner in the category “Inspiring Leadership” is Nadine Großmann, a PhD student in the group of Prof. Petra Knaus (FU Berlin). However, Nadine is not only a PhD student doing FOP research, but a FOP patient herself. Moreover, she volunteers at the German FOP association (FOP e.V.) as vice-chair and represents Germany at international meetings of the IFOPA as so-called International President’s Council (IPC).

To read the full article about Nadine please visit https://www.ifopa.org/2019_winners